I've been on hiatus following Claire Wineland's death, but little do most of you know I've been in a tough place on this topic for awhile. So, to honor her death-positive mission, and my own process, I'm pushing ahead, starting with this topic -- including the flip side of being aware of one's mortality. I have already discussed what it feels like to die - it's where we started this journey. Then I talked a fair amount about losing my best friend recently and how much death just follows me; I've lost an infinite amount of loved ones it seems. But, what does that do to me? To how I live my life? To how I approach death? Especially as someone with a chronic illness that could take me whenever? Let's dive in.


✧ Twitter: https://www.twitter.com/rollwthepunches
✧ Quick Disability FAQ:
-I have the trifecta of EDS (Ehlers-Danlos Syndrome, mostly hypermobile, but with some crossover into vascular) / POTS (Postural Orthostatic Tachycardia Syndrome) / MCAS (Mast Cell Activation Syndrome)
-I also have Erythromelalgia (aka "Man on Fire").
-Wheelchair user
-I also have many mental health complications from severe childhood trauma, but will mostly focus on medical disability here.



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I'm Kaalyn, chronic illness warrior, wheelchair bamf and certified hellion for the greater good. Fueled by compassion, hungry for education, and always good for a laugh. Here are my thoughts.