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The Rare hour with Christopher VelonaEpisode from the podcastThe Rare hour with Christopher Velona
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Nasty People in Rare...What gives?

Nasty People in Rare...What gives?

Released Saturday, 5th August 2023
Good episode? Give it some love!
Nasty People in Rare...What gives?

Nasty People in Rare...What gives?

Nasty People in Rare...What gives?

Nasty People in Rare...What gives?

Saturday, 5th August 2023
Good episode? Give it some love!
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Join us for a one-hour rare disease community support group. Here we will discuss the topics that affect your daily life in rare diseases as well as special needs. Being a parent is hard but having a child in rare disease takes a special kind of person and the journey is filled with potholes along the way. The pathway may never be clear, but together we can navigate by supporting each other. P.S. we are not a glum lot!

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